The National Rare Diseases Office (NRDO), is conducting an online survey to explore the need for psychological supports for people living with rare conditions in Ireland, including the supports available and the gaps that exist.
-
If you are interested in participating in this project, you will be asked to complete a 15-minute, anonymous survey (links below).
-
There is one survey for people living with rare conditions and a separate survey for family members/caregivers of people living with rare conditions. Please only complete one survey.
-
You must be at least 18 years of age to complete the survey.
-
If you have any questions please contact: NRDOadministration@mater.ie
-
This project is conducted in collaboration with Rare Diseases Ireland and Rare Ireland Family Support Network.
-
As part of phase two of this project we will be seeking expressions of interest from people who wish to be interviewed. If you would like to participate in phase two please email advocacy@rdi.ie
-
Survey for person living with a rare condition - https://questionpro.eu/t/AB3uv7BZB3vSud
-
Survey for family member/caregiver of a person living with a rare condition - https://questionpro.eu/t/AB3uv7BZB3vSwk
