Orphanet Ireland Team / Contact
Country Coordinator: Professor Eileen Treacy
Information Scientist: Darragh Nerney, MSc
If you have a query about registering your activity (expert centre, patient support group or research) on Orphanet, please contact us:
- E-mail: orphanet.ireland@mater.ie
- Phone: + 353 (0) 1 809 7448
- Post: NRDO, Mater Misericordiae Hospital, Eccles St, Dublin 7, Ireland
If you cannot find the rare disease information you are looking for on Orphanet, or your question relates to Irish services, please contact the National Rare Diseases Office information services:
- Website: www.rarediseases.ie
- Phoneline: +353 (01) 854 5065, Monday to Thursday 9:30-1:30
- email: rare.diseases@mater.ie
Useful Links:
European Reference Networks (EC)
European Platform on Rare Disease Registration (EU RD Platform)
Orphanet Journal of Rare Diseases
RD-ACTION: Data and Policies for Rare Diseases
