Care Pathways for Rare Diseases
The National Rare Diseases Office has developed a series of integrated care pathways for rare conditions. These care pathways are based on clinical practice guidelines and developed in collaboration with national clinical experts and Irish patient organisations.
The care pathways aim to:
• empower those affected by rare conditions to navigate the health service
• increase knowledge and awareness of rare conditions
• improve patient outcomes (more timely diagnosis, reduce waiting times to access services)
• support delivery of integrated multi-disciplinary care
• enhance links between across acute, primary and community care services
• be educational and clinical support tools
• enhance clarity of roles and responsibilities
