Onde encontrar informação fidedigna adicional sobre a sua Doença Rara
Outros Sítios Web sobre Doenças Raras:
- OJRD (Orphanet Journal of Rare Diseases): https://ojrd.biomedcentral.com/
- Rare Diseases - European Commission: https://health.ec.europa.eu/non-communicable-diseases/expert-group-public-health/rare-diseases_en
- Redes Europeias de Referência: https://health.ec.europa.eu/european-reference-networks/overview_en
- RD – Action: http://www.rd-action.eu/
- European Medicines Agency: https://www.ema.europa.eu/en/human-regulatory/overview/orphan-designation-overview
- Office of Rare Diseases Research (US): https://rarediseases.info.nih.gov
- IRDiRC (Internacional Rare Diseases Research Consortium): https://irdirc.org/
