HUG - Hôpitaux Universitaires de Genève
The HUG - University Hospitals of Geneva have been the headquarters of Orphanet Switzerland since 2001. They finance a part-time job for the coordinator and provide logistical and administrative support for the project.
AEMO
The association Enfance & Maladies Orphelines contributes to the financing of the Orphanet Switzerland team.
ELA - Association Européenne contre les Leucodystrophies
The national ELA Switzerland office contributes to the financing of the Orphanet Switzerland team.
FSRMM - Schweiz stiftung für die erforschung der muskelkrankheiten
The Foundation aims to promote scientific research on muscle diseases in Switzerland. The foundation contributes to the financing of the Orphanet Switzerland team.
Fondation privée des HUG
The HUG Private Foundation is the Foundation of the University Hospitals of Geneva (HUG) and the Faculty of Medicine of the University of Geneva (UNIGE). Its aim is to finance essential projects in favour of medical knowledge, comfort and quality of care, for the benefit of all patients. The foundation contributes to the financing of the Orphanet Switzerland team.
EJP-RD - The European Joint Programme on Rare Diseases
As the Orphanet network is a partner in this programme, Orphanet Switzerland receives funding to identify, collect, and register research data (research projects, clinical trials and patient registries) focused on rare diseases at national level.
kosek - coordination nationale des maladies rares
Since 2019, Orphanet Switzerland and kosek have been working closely together on the evaluation and publication of centres of reference.
ProRaris
Orphanet Switzerland played a role in the creation, in June 2010, of ProRaris, the Swiss Rare Disease Alliance. A close collaboration has been established to identify information services for patients and professionals both in the organisation and promotion of rare disease events, in order to increase public awareness of rare diseases in Switzerland.
Swiss Rare Disease Registry (SRDR)
The RSMR aims to identify all people with a rare disease living and/or being treated in Switzerland. Orphanet Switzerland has a close collaboration with the SRDR, specially for the implementation of the Orphanet nomenclature in health systems.
MaRaVal
MaRaVal – maladies rares valais/seltene krankheiten wallis – is a non-profit cantonal patient association, founded in August 2017, addressing all Valaisans affected by a rare disease.
