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relevant at the national level on rare diseases and orphan drugs (information in Deutsch, Italiano, Français and English) **************************************************************************************************************************************************************** ORPHANET SCHWEIZ-SUISSE-SVIZZERA data in numbers as of October 2025 : 331 Expert centers, 130 patient organisations, 691 research projects, 331 clinical trials...

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Symposium sur les maladies génétiques neurodéveloppementales rares - 14 novembre 2025, HUG Genève

🟣Après-midi scientifique et clinique s’adressant à l’ensemble des professionnel-les concerné-es par le parcours des enfants atteints de maladies rares à expression neurologique précoce : pédiatres, neuropédiatres, généticien-nes, équipes de développement, soignant-es, thérapeutes, responsables institutionnels et du monde éducatif mais également aux familles🟣

Elle vise à faire dialoguer expert-es, clinicien-nes, chercheur-ses, familles autour d’une thématique complexe mais essentielle : comment améliorer le repérage, la prise en charge et les perspectives thérapeutiques pour ces enfants et leurs familles.

▶️Vendredi 14 novembre 2025. ▶️Maison de l'enfance et de l'adolescence (MEA) des Hôpitaux Universitaire de Genève,Boulevard de la Cluse 26,1205 Genève
Ouverture du congrès à 13h00

▶️Programme: https://formations.revmed.ch/maladies-rares/symposium-sur-les-maladies-genetiques-neurodeveloppementales-rares Ouverture du congrès à 13h00

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News in Switzerland
News in Switzerland

Orphanet - 2024 Activity Report

🔵Orphanet - 2024 Activity Report🔵 including information on Orphanet Switzerland.

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News in Switzerland

Seltene Krankheiten: Bundesrat will Gesundheitsversorgung nachhaltig verbessern. Medienmitteilung 12.09.25. BAG (DE-FR-IT)

Bern, 12.09.2025 — Der Bundesrat möchte mit einer neuen gesetzlichen Grundlage die Rahmenbedingungen für die Gesundheitsversorgung dieser Menschen verbessern

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News in Switzerland

Newsletter ProRaris- September 2025 (DE-FR)

🔵Newsletter ProRaris- September 2025 (DE-FR)🔵 ProRaris Allianz Seltener Krankheiten- Schweiz/ ProRaris- Alliance Maladies Rares- Suisse/ ProRaris Allianze Malattie Rare- Svizzera

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News in Switzerland

News von der Nationalen Koordination Seltene Krankheiten, August 2025 (DE-FR)

🔷Newsletter von kosek🔷Eine Analyse der Meilensteine, wichtige Informationen aus der ersten Jahreshälfte und Überlegungen zu Koseks Erwartungen bis zum Jahresende

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News in Switzerland

ITINERARE Symposium 2025, November 18th 2025 from 09:00 to 18:00, University Children’s Hospital Zurich.

The programme features experts from a variety of fields, ranging from basic and translational research to clinical application and the ethical, social and legal aspects of rare disease research. Join...

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Events-Conferences

18-11
2025

ITINERARE Symposium 2025, 18th November 2025, Zürich

🟢ITINERARE Symposium 2025🟢 ➡️November 18th 2025 from 09:00 to 18:00. University Children’s Hospital Zurich. ➡️The program features experts from a variety of fields, ranging from basic and translational research to clinical application and the ethical, social and legal aspects of rare disease research. ➡️Join them to stay up to date with the latest developments and discuss them with world-leading experts. ➡️Registration to the event is open in September. ➡️The event is free of charge.

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